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Gu has managed to secure a part-time job doing cleaning work at a restaurant near their temporary home in Shanghai.
For the one hour she works in the morning, she is paid 30 yuan. After Hao finished his last treatment this month, his mother Jiang decided to bring him home.
On a doctor’s recommendation, Hao’s family moved to Shanghai, one of the few cities in China where patients can expect to receive top-quality medical care.Though cramped and far from ideal, the house was just a 20-minute walk from the Shanghai Children’s Medical Center (SCMC), where Hao would receive his daily treatments.Every morning, the family would get up at 6 o’clock and, after a quick breakfast, accompany Hao — who by that time was using a stroller — to the children’s hospital.With so many patients in these areas, they start to resemble giant outpatient wards.“In the morning, you can see lots of parents rolling their children to the hospital,” said Zhang Jianming, a parent from Jiangxi province whose daughter also receives treatment at SCMC.The cost of seeking better care and better facilities in the big city is a huge burden for rural families.Depending on the duration of the treatment regimen, they can rack up medical bills in the millions of yuan, and government health plans usually only cover a fraction of the cost of treatment received outside of a patient’s home province.Wu Yue/Sixth Tone 12/21 Gu Lin poses for a photo with her 8-year-old son Yuang at their apartment in Shanghai, Aug. Gu and her husband have spent more than 300,000 yuan on treatment during their six months in Shanghai.Wu Yue/Sixth Tone 14/21 Yuang’s father Tao Youbing talks on the phone with family members, Shanghai Aug. He is struggling to cope with both his son’s leukemia treatments and his sick father back home.Hao reacts as his body rejects a treatment of transplanted hematopoietic stem cells, Shanghai, Aug. Wu Yue/Sixth Tone The family packed some clothes and toys and got on the last bus to the nearest metropolis: Shanghai, some 460 kilometers away.“At the time it was not clear which disease it was, but the doctor suggested we go to Shanghai for treatment in any case,” said Jiang.